Three years and countless battles

Three years ago, I was 41 weeks and 1 day pregnant with a stubborn, stubborn baby who refused to come out. And if you think for one moment that that 1 day is insignificant, you have never been pregnant.

Her name is Lillian. And three years ago on this day she was born.

She was high up in my rib cage, far away from any exit strategy, and had made zero progress or move to come out. She was happy in there. Coming out was not her idea. And therefore, she would not participate or help in any way. This should have been a sign of things to come.

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Lillian has always forged her own way, doing things in her time on her schedule according to her plan. Always.

The doctor who performed the C-section to get her out of my belly said she had never seen a baby who was so overdue that high up before. She literally had to reach up into me to pull her out. After hanging out with Lillian for three years, I’m not surprised in the least that was the case.

She had a striking white patch in her black, black hair, just like her daddy. We knew this meant she had been born with the same genetic disorder Ben has. It was the talk of the nurses in the delivery room, our family, and anyone who met her. All I knew was all that hair was the cause for all of my heartburn during my pregnancy with her.

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She needed hearing aids and got them when she was just four months old. We were so new at the whole baby-with-hearing-aids thing that we had to be told by the audiologists that we shouldn’t let her have them in while we were driving because she’d probably eat them. They were right. She did.

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She also took them off and threw them, hid them, chewed them, lost them, delivered them to us, and generally gave us countless panic attacks around them (you try putting thousands of dollars of equipment in a baby’s ears and you tell me how calm you are).

She also rocked them. They were pink and she was and still is a rock star at every appointment, sitting still while molds are formed, while tests are run, while tubes are cut and while adjustments are made.

And she used them as an act of defiance when she was mad at us, looking us straight in the eyes while pulling them out and throwing them. Luckily they were attached by a cord and for a while tucked under a cap that made her look like she was a 1920’s bather or an old-school pilot, but still no one could lose her ‘ears’ like Lillian could.

Lillian was a candidate for a cochlear implant, giving her the potential to have near perfect hearing. Since she was completely deaf in her right ear and had a mild loss of hearing in her left ear, this was miraculous. It has since proved to be just that.

During the operation she was amazing, even collecting a Dr. Seuss as her anesthesiologist (at a children’s hospital! Seriously!). But afterwards she was true to form, pulling out three different IVs. And while I would have milked that operation for all it was worth, she was up and bouncing around like her normal self in no time afterwards.

Lillian has always been her own person, quiet and reserved in a new place, loud and rambunctious where she feels safe. Roaring like a tiger or ARGHing like a pirate at the top of her lungs. Lauding every fart or burp that comes out of her little body or anyone else’s for that matter. Reveling in chaos yet thriving in comfortable situations. Refusing to smile for posed pictures but cackling for anyone’s phone camera.

She is the buttliest of butts and I mean that in the nicest, kindest, most loving way possible. She has taught me the art of negotiation, the art of patience, the art of snuggling on the couch until she can’t sit still anymore. She has taught me that bravery often comes in the smallest of packages and that even though she was handed an extraordinary set of circumstances she is a completely normal kid.

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Today is her day and I’m so glad she is mine. Ours. In our family and in our lives.

Happy happy birthday, Lillian!

Love, Mama (a.k.a. Julia)

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4 thoughts on “Three years and countless battles

    • Adrienne – We LOVED the Monkey Gear. ๐Ÿ™‚ It saved us literally thousands of dollars. Thank YOU for inventing and selling such a great product. We are forever indebted to you!

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